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Welcome to Through My Son’s Eyes: A Life Beyond Vision

This blog is a space for awareness, understanding, and quiet strength.

Here, I share life as a mother raising a child with Stargardt disease—not through medical terms, but through everyday moments, emotions, and lessons that often go unseen.

This is a place for parents, caregivers, teachers, and anyone who wants to understand childhood vision loss beyond appearances. It is about adapting, supporting, and believing in a life that continues with dignity and hope.

If you would like to share your own story or experience, you are welcome to reach out to me on my Google account at:

📧 pujanaik805@gmail.com

I would be honored to share your story or feelings through this blog with the world.

You are welcome here.
Thank you for taking the time to see life beyond vision.

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The Day We Discovered Our Child Had Stargardt Eye Condition

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 S ome days arrive without warning and quietly change everything. The day we discovered our child had Stargardt eye condition was one of those days. There was no dramatic moment, no loud cry, no clear sign that life was about to shift. It began with small things—things only a parent notices. When Something Didn’t Feel Right At first, it didn’t seem serious. Our child moved closer to books. Held the phone a little too near. Squinted at distant objects. We told ourselves it was normal. Children grow. Eyes get tired. Screens strain vision. Like many parents, we didn’t want to imagine anything more. But the signs didn’t go away. He struggled to recognize faces from a distance. Reading became slower. Bright light bothered him more than before. Still, he rarely complained. Children adapt quietly. They don’t know that what they are experiencing is different—until someone tells them. The Hospital Visit We Thought Would Be Simple We went to the eye clinic expecting an easy a...
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